Last week we went to Shriner's to have Elodie's wheelchair evaluation. It was sweet. The tech put Elodie up in this giant measuring chair. She was measured head to toe. It was like she was getting fitted for a fancy suit. They stretched out her legs and arms and measured how wide she is. So funny. She was pretty stressed about it, being in that big ol weird chair. She was saying, "Mommy, mom, help," the whole time and doing the "gimme, gimme hand." Those are so hard to resist, but she had to stay put. The wheelchair is going to be tiny, twenty-two inch wheels. It will be small enough that she can learn to get in and out of it. It is teal, we are into teal lately and the kind of frame she needs didn't come in pink. I am glad about that. She has far too much pink.
I am happy about her getting a wheelchair and more independence, but there is a part of me that still can't believe it. My little girl is going to be in a wheelchair for God knows how long. She can move her legs more, and she is getting better at standing on her own, but the nerve impulses to walk aren't there yet, and might never be. It does make my heart ache. No one ever expects a tumor to grow in their baby and cause that baby's legs not to move. At times I blame myself for this happening. I think about my pregnancy and how stressed it was. My grandparents died, my mother went insane, I was still in an ugly custody battle with my ex, I had a small baby Joaquin to care for and I had panic attacks from all the stress. I felt so alone and just tried so hard to keep it together. Camden tried his best to deal with me, but he worked all the time. I remember reading that in Japanese culture the mother has to be protected from all negativity while she is pregnant, or health problems will come to the baby. That small story has echoed in my head. I know, I know, it isn't my fault, but it is so hard as a mother to not want to take on all the responsibility. All I want in life is to care for my children and do the best by them that I can, I feel like I failed Elodie when I was pregnant. I feel I should take some blame because I didn't take care of myself while I was pregnant with her. I took on too much. I still feel like I take on too much, but that is sort of a necessity. There is no one else that can do what I do, so I do it....and I do really love it. A mommy life is hard but ridiculously rewarding. No amount of money comes close to the feeling I get when my kids want one more hug and say I love you with their smiley little faces.
Everyday is interesting and full of dainty evolution. Elodie and I are coming closer and closer to being stronger. She has a lot of special talents. She is pulling up on her knees, big and tall. She speaks so well. She dances (on her bum and knees) and sings, I will teach her to harmonize. She loves everything so much. She hugs hard and kisses hard and bites HARD. Elodie has old eyes and can see right through to the very heart of people. She is going to be such a powerful force in mine and other peoples' lives....and now she is going to do it on wheels!