Lately this has been the "Elodie Chronicles," her present situation has taken over the blog in a big way. She tends to do that where ever she goes really. Today in the radiation department was a great example of that. She has been there five times in the last two weeks. FIVE! Everyone knows her. They brag about her sweet disposition whenever they hand her over to another nurse or technician. She is the good IV girl. She hardly makes a peep and is more offended then physically hurt when they come at her with needles. She is also cute when they sedate her. During these scans she has to be completely still, so sedation is always on the menu. Today she was singing, literally singing, "Lalala" when they gave her the sleepy drugs. She then saw me smiling down at her, she pointed at me and said, "Hey!" As if to say, "Why are there so many of you mommy?" So funny.
So today she had an MIGB. She was radioactive. Hope it gives her super powers, but meh, it probably won't. Yesterday we met with Dr. Michael Rollins. He is going to be doing the biopsy on Wednesday the third. He was so very nice. He actually apologized for having to cancel the first appointment we had with him last week. I don't think I have had a doctor apologize for anything. It was shocking and I thanked him. Joaquin was with us, and he was good. He didn't mind being shuffled from office to office. He was so concerned about his sister while she was getting her exam, he even shushed me! It was funny and he got a sucker for being an awesome big brother. We looked at the CT films and he was very interested. Afterward he was telling us about it in the elevator in his own language of course.
Elodie will have to stay in the hospital over night when she has the biopsy. They are going to do it with scopes so she will only have a few tiny incisions. She will also have a chest tube to drain out any fluid from the surgery. She will most likely have another surgery to remove the thingy when the test results come back from the biopsy. Once we know exactly what stage of tumor it is the doctors will know how to treat it effectively be that surgery, medication, or a combination of both.
Her blood tests all came back great. Her white blood cell where normal as were her electrolytes, which if they were elevated may suggest a more aggressive tumor, but they weren't so Yea! I had to get a urine sample from her and drop it off today. This was hilarious. They gave me these little bags with a sort of bandaid at the top to stick to her lady bits, then the bag had cotton balls in it to absorb the pee. I had to squeeze the pee out of the cotton and pour it into the specimen cup. Gagg. Baby pee is so stinky. You really know you love someone when you willing squeeze their pee from a stinky bag into a cup and then put that cup in your fridge. It is true love and it is real.
Elodie is doing fine through all of this. She has no idea what is going on, she just knows she is getting a lot of attention. I don't think she minds that. Joaquin is mostly stealing the family spotlight. We and the doctors are positive about her diagnosis. She is so strong and happy. There is no need for "poor baby" stuff directed toward her. "Poor mommy," sha! She is happy and usual and up for anything. She pleasantly goes about her day, every once in awhile offering herself up for experiments and test. She presents her arm reluctantly, but proudly for her IVs. She pees in bags with dignity. She is unapologetic in her loopiness and no matter how pissed she is during the tests she always greets her nurses with a "hello." She is a shining example of a good patient. We are very proud of her and love her for her resilience. She is a tough cookie, so watch out world, here comes Elodie!
Thursday, August 28, 2008
Radioactive Baba GRRRL!!!
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1 comments:
i really must meet her one day!! what a sweetheart! sounds like you all are being well taken care of by all the awesome staff at pcmc! your attitude is perfect...and so is elodie's! so glad for the update!
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