Wednesday, November 19, 2008

Ferociously HAPPY!!!


Elodie got her braces today. Woo-Hoo!!! The go up to her thigh and have a locking hinge. (Don't you love that word? Hinge.) When she is standing the lock slides into place and the braces support her knees so she can stand. After her fitting, I put her down in the elevator and she stood up happily holding onto the rail. She giggled as she saw us going up and up and up! She got a walker to help her get around. She was so excited, she even took a few small steps. I was seriously loosing my mind when she did it! There were three other families in the therapy room and I was totally making a fool out of myself, clapping, cheering, even some jumping up and down. It is so echoey in there, the whole hospital probably heard me freaking out. Joaquin was helping too. He was right there with me saying, "Come on baby, walk!"

I took this picture with my camera phone, so that is why it is not that great. She really took to the braces and the walker. I am sure she will dig this walker more than the pony one, because in that one she can't move the wheels as well. She was exploring and curious which is exactly what we want her to be. She didn't fuss or anything. I am so proud of her and thankful for what movement she has. I love going to Shriner's because it really helps put things in perspective. Today there where a lot of older kids in the orthotic department, most of them with much more serious issues than Elodie. Those kids and their families are such an inspiration to me. If they can do it, so can we, this is how it is and I am grateful.

That reminded me an annoying experience at Elodie's 18 month check up last week. Her regular doctor wasn't available so we went to the physician assistant. It was a routine sort of visit, nothing serious to discuss. She pretty much just needed to be measured and needed her shots. But the PA, insisted on being an a-hole and talking about whether I had fears that Elodie was going to be in a wheelchair all her life and not get any dates in high school. Pfft... Can you believe that? I mean sure, it is a concern, but I don't think or focus on it. I was more fearful that she had cancer or something deadly than whether or not she was going to be serious make out material in high school. Lame. Wheelchair or not, she is my daughter and I love her just the way she is, and her good friends will too. She is super cute, so I know that dates won't be a hard thing for her to come by. I was so pissed but I was respectful to the a-hole. Gah, some people. But he was pretty old, so I know he grew up when they used to throw disabled kids in institutions and forgot about them. I know some people have a problem with kids that aren't totally perfect, but I sure as hell don't, mine or anyone else's. It was so lame that a medical professional could be so clueless. My mama lion almost came out and scratched his face off. I guess I need to get used to that sort of ignorance. I don't mind answering questions, it is just the assumptions that boil me up inside. My Elodie is probably the smartest, most well adjusted kid I know, and I know that nothing is going to knock her down. Except maybe if she doesn't have her braces on and her brother pushes her over, then she will fall down. We must get used to that as well.

6 comments:

Brynn said...

I am proud you didn't rip the PA's face off! I probably would have ;) Chad gets embarrassed sometimes because I don't hold back ;)

Melissa said...

I am so glad she is well on her way to being a little more independent. Ya, I hate it when people dwell on what our babies can't do instead of how far they have come. I know my Emma's diagnosis is completely different but I feel that the journey has a lot of similarities. She cannot crawl normally yet. She is just doing a sort of army crawl.

Cadie said...

Go, Elodie, go! No matter what "problems" some people choose to focus on, things could always be worse. I think it's all about the attitude we have and the amount of our own power we give away to our "problems" that counts. If you want ME to go rip that PA's face off, say the word! :) Just kidding, I know that's not your style, you killed him with respect and not letting his stupid words get a reaction (in the moment at least). Way to stay cool, momma!

Mandy said...

Beautiful Post!!!

I love you, you know. You are a great mommy.

CONGRATS to ELODIE!!!

Jer said...

A big congrats to Elodie! Meh on the doc. I can't believe he was that tactless.

Hearing that Joaquin was cheering her on as well made me fog up a little. What a good brother.

Bella said...

yeah for elodie and taking her first big steps!!! boo for the idiotic p.a.!!

one of my favorite parts of the post is when you AND joaquin are freaking out with joy! never hold that back!